The infectious diseases folks have determined that I have a coagulase negative staphylococcus bacterial infection in my port. They have offered various proposals for treating it including, ugh, removing the port, treating the infection, installing a PICC line in the interim and then reinstalling a port. I don’t have to tell you I did not really like this option, but we really need to get rid of this infection so we can start my chemotherapy. Yesterday, they decided, however, to do a treatment in the port while blocking all other access to the port. All my previously infused medications are now coming as either an injection or a pill. On a set schedule, they lock the port with a solution in the port. When it’s the time for treatment, they unlock the port and proceed with infusing vancomycin into the port. After the infusion, they lock the port again by filling it again with a lock solution, either heparin or saline.
The problem with bacterial infections in the port is that bacteria has a quality of stickiness that causes the little critters to cling both together and to the port-a-cath. We are hoping that this targeted treatment will overcome that characteristic. If so, we will be able to move forward to chemo sooner than if we have to remove the port then treat the infection.
My breathing has improved with this wonderful suction machine that they have going around the clock. This morning I took my first really deep breath and felt like I got a deep breath full of air. Most other times I would have to inhale or yawn a number of times before I was able to feel as though I got a good breath.
Yesterday brought a delightful afternoon in glorious contrast to my previous afternoon. While exercising in the afternoon, the medical students came by to see how I was doing. I told them I was doing a dance routine. Immediately, they asked if I would be willing to show them the dance. Haha. Little do they know. So I started teaching one while the other attended to another patient briefly. I could not make it through the routine, of course, so I showed the steps and then sat and talked her through the choreography that I had taught her in pieces. She was a star, even though she said she doesn’t dance at all. The other student returned, and I taught her the routine, so they both danced together. We had so much fun, and people passing my room were peeking in to see what was going on as the music of One Direction was not too loud to disturb others but enough that you could hear “What Makes You Beautiful” just outside my door. It really made my day, and that old teaching spirit was feeling fantastic even though I could not actually dance the routine with them. I hope I can find other willing participants.
Time for my first walk of the day around the floor.
Again, thank you for all your support. It is helping me gain strength so I can get out of here soon.
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