In keeping with the roller coaster theme, we are again changing plans. It appears that the cultures finally revealed that that staphylococcus lugdenensis grew from two areas of my body but both devices: one from the lung catheter and the other, now it appears, from my port-a-cath. The resolution: remove the port-a-cath. As much as I wanted them to save it earlier on this ride, I now just want it out of me so we can treat the infection and move forward. The plan, therefore, is to keep me to remove the port, though we do not yet have a schedule. I hope that with the holiday week, the procedures staff are still working and can do this today or earlier tomorrow.
After they remove it, they will continue me on the antibiotics, insert a PICC line in preparation for chemotherapy after resolution of the infection, and then eventually insert another port-a-cath. In cancer land having a port is the easiest way to go with the least opportunity for infection. I have had the port since early 2009, so at least I got a good run from this one and expect to get another that will last as long, too.
I don’t yet know the revised schedule, but I am anxious to get started so I can get out of here, though I don’t want to leave until it’s resolved as much as possible with the new direction.
Last evening I had an abdominal CT scan, which went without incident despite my overall anxiety. I managed to get through a day that made me feel like I was about to melt down every hour or so. Anxiety is insidious; it starts and builds and takes on a life of its own unless you somehow curtail it along the way through some method. Since many of the options are no longer available, I either meditate or medicate, with the former more often but sometimes difficult to maintain with a steady focus and the latter less often but when I know it is necessary and will work forthwith. I expect today will be more serene. On a good note yesterday I had some wonderful visits from friends and from the chaplain and one of our social workers from the cancer center. It helped.
Again, thank you all for following me and contributing your comments and support. It must be a bit tiresome reading this litany some days, but I hope that it is helping to show that metastasis has many hurdles but that there are often ways to deal with them even when it seems dire.
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